Run 4 Larry

Charity Ride for Head and Neck Cancer

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Why are we doing this?

Posted by [email protected] on March 6, 2016 at 10:25 AM Comments comments (0)

Lately there have been questions as to why Bryan and I feel this is important.

Anyone who knows us knows we are philanthropic.  Along with philanthropy comes a deep  concern and love for others.  Since Bryan has gone through this whole situation we decided others should not have to  go  through it if there is any way to avoid the trials and tribulations we experienced.

So here is a description (it was WAY worse than it sounds too!) of what it is like and the events surrounding our decision to find a way to end the horror associated.


Bryan, a smoker for over 40 years, started having trouble speaking and swallowing in August 2010.  Doctors repeatedly told him it was just a throat infection.

After returning from losing her brother to Bladder Cancer in October 2010 Helen told Bryan to see a different doctor.  He did just that.

Bryan had a tracheotomy on December 21, 2010.  He was diagnosed with Stage 4 Laryngeal Cancer Christmas Day 2010.  (Merry Christmas! what a present that was).

Bryan had a total radical resection in January 2011.  After 13 hours of surgery Bryan emerged with a new esophagus created from his arm and his arm reconstructed from his leg.

Helen threatened “If you die on me I will kick you so hard you will come back in that body just to make me stop.” and "If you die on me I will tie a rope around your ankle and drag you around with me until you stink so bad people will tell you 'Man Bryan you REALLY! stink.' just to make you miserable."

The life changes effected by this cancer are incomprehensible.  Never would Bryan and Helen have imagined how different their life would be.  The saving grace is in 2016 Bryan is ALIVE!!!!  Without the London Health Sciences Center Head and Neck team and their heroic efforts Bryan would not be here today.

People need to be educated and learn how drastic this diagnosis is and the changes which must be endured because of this cancerous tumor on life!  Bryan not only lost his sense of smell, taste, voice, (ask Helen about this), snoring (this was a blessing for Helen), ability to swallow, etc.; but now he must clean his stoma several times a day and travel to London, Ont. approximately every six weeks to get his prosthetic implant replaced.  Then there are the noisy pieces of equipment which must be dragged around in case they are needed when on vacation.  The suction machine, the humidification, CPAP, etc.

Bryan and Helen’s twin grandsons born in 2011 accept the hole in Bryan’s neck as they have never known anything different, however they are now asking questions about it as their friends and other people seem appalled and unable to look at Bryan or else they stare at the hole in his neck.

More research is needed to find ways to enhance the quality of life for the survivors of this horrendous diagnosis.  Perhaps someday Bryan and others like him will someday be able to breathe, speak, and eat like those who have not had to undergo such extensive lifesaving surgery.  Until then education and research are needed to get there.

Loss

Posted by [email protected] on Comments comments (0)

It is with much confusion and a heavy heart I am forced to announce that Dukes Harley Davidson has decided to remove its name from our list of donors.

In Sept. 2015 we contacted Dukes Harley Davidson (our FIRST contact on this venture) to enlist them as an initial donor to help in our cause.  We corressponded in person at Dukes Harley Davidson with Chris Hall, via telephone and email regarding our plans.  Chrs Hall willingly agreed with us, this venue would be beneficial  not only to our cause but it woud also benefit his business, to allow us to use his parking lot as the primary area for our event .  This would entail only the use of his parking lot as we have our own security, insurance, generators, grills, tables, seating, tents, PA System, etc.  We would bring 50 to 100 motorcyclist enthusiasts to his business location.  This would draw attention to his business by potential customers, showcasing them as charitable and amenable, to an untapped customer base,  whether they were open or not.

We felt Dukes Harley Davidson was an excellent location for our venue as it is centrally located between the two start points and was appropriate to the audience.  We asked only for the use of the parking lot, although Chrs Hall made offers of other assitance, which delighted us!

While the founders of Run 4 Larry were out of the area we were contacted by the Chatham Kent Police and informed there had been allegations of fraud made against us.  We have proven this is not case by openly providing email correspondence between ourselves and Dukes Harley Davidson as well as the letters of authorization from London Health Sciences and all relevant contact information detailing our committment to this cause.

Dukes Harley Davidson's only explanation for this decision, was they believed the date was Saturday July 2nd not Sunday July 3rd..

I am at a complete loss to explain the allegations and reasoning for a costly investigation both into our reputation and intentions for the Chatham Kent Police Deparmen,t as well as the stress and costs involved for us, if it is somehing as simple as a communication error or misunderstanding.

PLEASE, if you have any questions at any time regarding this underfunded worthwhile cause contact us IMMEDIATELY!  The costs involved in graphic redesign and printing are rapidly mounting and we are trying to keep the costs at a minimum to furter the donations available to London Health Sciences.

Sincerely;

Helen K. Wolfe

 Bryan Halfday